{"id":18574,"date":"2026-06-19T17:11:09","date_gmt":"2026-06-19T15:11:09","guid":{"rendered":"https:\/\/panel.ptcbio.com\/es\/patients-caregivers-resources\/"},"modified":"2026-06-19T17:11:30","modified_gmt":"2026-06-19T15:11:30","slug":"patients-caregivers-resources","status":"publish","type":"page","link":"https:\/\/panel.ptcbio.com\/es\/patients-caregivers-resources\/","title":{"rendered":"Patients &amp; Caregivers Resources"},"content":{"rendered":"<div class=\"alignfull new-hero new-hero--new-hero--has-image\">\n\t\n\t\t<figure class=\"new-hero__img-outer new-hero__random\">\n\t<picture>\n\t\t<source width=\"2500\" height=\"900\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Wide-Patient-and-Caregivers.jpg\" class=\"attachment-full size-full\"  media=\"(min-width: 1921px)\" sizes=\"max(100vw, 1733px)\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Wide-Patient-and-Caregivers.jpg 2500w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Wide-Patient-and-Caregivers-300x108.jpg 300w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Wide-Patient-and-Caregivers-1024x369.jpg 1024w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Wide-Patient-and-Caregivers-768x276.jpg 768w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Wide-Patient-and-Caregivers-1536x553.jpg 1536w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Wide-Patient-and-Caregivers-2048x737.jpg 2048w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Wide-Patient-and-Caregivers-400x144.jpg 400w\" \/><source width=\"1920\" height=\"800\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers.jpg\" class=\"attachment-2048x2048 size-2048x2048\"  media=\"(min-width: 576px)\" sizes=\"max(100vw, 1498px)\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers.jpg 1920w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-300x125.jpg 300w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-1024x427.jpg 1024w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-768x320.jpg 768w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-1536x640.jpg 1536w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-400x167.jpg 400w\" \/><source width=\"583\" height=\"732\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-583x732.jpg\" class=\"attachment-leadership size-leadership\"  media=\"(min-width: 400px)\" sizes=\"max(100vw, 497px)\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-583x732.jpg 583w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-342x429.jpg 342w\" \/><source width=\"400\" height=\"600\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Mobile-Patient-and-Caregivers.jpg\" class=\"attachment-leadership size-leadership\"  sizes=\"max(100vw, 416px)\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Mobile-Patient-and-Caregivers.jpg 400w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Mobile-Patient-and-Caregivers-200x300.jpg 200w\" \/><img width=\"1920\" height=\"800\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers.jpg\" class=\"new-hero__img new-hero__random\" alt=\"\" loading=\"eager\" fetchpriority=\"high\" decoding=\"async\" sizes=\"max(100vw, 1498px)\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers.jpg 1920w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-300x125.jpg 300w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-1024x427.jpg 1024w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-768x320.jpg 768w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-1536x640.jpg 1536w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/Header-Image-Desktop-Patient-and-Caregivers-400x167.jpg 400w\" \/>\t<\/picture>\n\t<figcaption class=\"new-hero__img-cap new-hero__random\"><div class=\"container container--max-width container--padded\">\n\t\t<\/div><\/figcaption>\n\t<\/figure>\n\t\n\t\t\t<div class=\"new-hero__inner\">\n\t\t\t<div class=\"new-hero__content new-hero__content--has-image\">\n\t\t\t\t\t\t\t\t<h1 class=\"new-hero__title\">Patients &amp; Caregivers<\/h1>\n\t\t\t\t\n\t\t\t\t\t\t\t\t<div class=\"new-hero__subtitle\">We&#039;re Here to Help<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class=\"new-hero__eyebrow\">We provide resources and support to patients and their families throughout their journey<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n\n\t<div class=\"hero__breadcrumbs\"><nav\n\tclass=\"breadcrumbs breadcrumbs--shallow\"\n\taria-label=\"Breadcrumb\"\n>\n\t<ol class=\"breadcrumbs__list\" itemscope itemtype=\"https:\/\/schema.org\/BreadcrumbList\">\n\t\t\t\t\t\t\t\t\t<li class=\"breadcrumbs__crumb breadcrumbs__crumb--light\" itemscope itemprop=\"itemListElement\" itemtype=\"https:\/\/schema.org\/ListItem\">\n\t\t\t\t\t\t\t\t\t\t\t<a class=\"breadcrumbs__link breadcrumbs__link--home breadcrumbs__link--light\" itemprop=\"item\" href=\"https:\/\/panel.ptcbio.com\/es\/\">\n\t\t\t\t\t\t\t<span class=\"sr-only\" itemprop=\"name\">Homepage<\/span>\n\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t<meta itemprop=\"position\" content=\"1\" \/>\n\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t<li class=\"breadcrumbs__crumb breadcrumbs__crumb--light\" itemscope itemprop=\"itemListElement\" itemtype=\"https:\/\/schema.org\/ListItem\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span\n\t\t\t\t\t\t\t\tclass=\"breadcrumbs__current\" itemprop=\"item\"\n\t\t\t\t\t\t\t\taria-current=\"page\"\t\t\t\t\t\t\t>\n\t\t\t\t\t\t\t\t<span itemprop=\"name\">Patients &amp; Caregivers Resources<\/span>\n\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<meta itemprop=\"position\" content=\"2\" \/>\n\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ol>\n<\/nav>\n<\/div>\n\n\n\n<p class=\"has-text-align-center has-xl-font-size wp-block-paragraph core-block core-paragraph\"><strong>Through collaboration, compassion, and partnership, we provide support that empowers. We also work with advocacy groups around the world to help raise awareness of the unique challenges our community faces.<\/strong><\/p>\n\n\n<div class=\"alignfull wp-block-acf-seven-five-split\">\t<div class=\"seven-five__inner container container--padded container--max-width seven-five__inner--center seven-five__inner--right\">\n\t\t<div class=\"seven-five__wrapper\">\n\t\t\t\n\t\t\t\t\t\t\t<h3 class=\"seven-five__heading heading--3\">A personal guide for navigating treatment<\/h3>\n\t\t\t\n\t\t\t\t\t\t\t<div class=\"seven-five__description wysiwyg wysiwyg--pure body-copy--1\"><p>With our PTC Cares\u2122 program, you can receive personalized support to gain access to treatment. Our case managers are here to help address any potential challenges.<\/p>\n<\/div>\n\t\t\t\n\t\t\t<ul class=\"im-cta__list\">\n\t\t\t<li class=\"im-cta__item\">\n\t\t\t<a href=\"https:\/\/ptccares.com\/\" target=\"_blank\" class=\"text-cta text-cta--primary\">\n\t\t\t\tVisit PTC Cares\t\t\t<\/a>\n\t\t<\/li>\n\t<\/ul>\n\t\t<\/div>\n\n\t\t\t\t\t<div class=\"seven-five__image-outer\" style=\"--ptc--75-img-w:auto;\">\n\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"183\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/ptcCares300.png\" class=\"seven-five__image\" alt=\"\" sizes=\"auto, (min-width: 1920px) 576px, (min-width: 1440px) 552px, (min-width: 1200px) 456px, (min-width: 900px) 344px, (min-width: 768px) 720px, (min-width: 600px) 540px, 100vw\" \/>\t\t\t<\/div>\n\t\t\n\t<\/div>\n<\/div>\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n<div class=\"alignfull wp-block-acf-seven-five-split\">\t<div class=\"seven-five__inner container container--padded container--max-width seven-five__inner--center seven-five__inner--left\">\n\t\t<div class=\"seven-five__wrapper\">\n\t\t\t\t\t\t\t<div class=\"seven-five__subheading heading--6\">Insightful Moments&trade;<\/div>\n\t\t\t\n\t\t\t\t\t\t\t<h2 class=\"seven-five__heading heading--3\">Become empowered with knowledge you can trust <\/h2>\n\t\t\t\n\t\t\t\t\t\t\t<div class=\"seven-five__description wysiwyg wysiwyg--pure body-copy--1\"><p>Educational support and resources for families living with rare disease. You will find programs and materials covering topics from navigating clinical trials to tips on how to handle stress.<\/p>\n<ul>\n<li><a href=\"https:\/\/www.ptcbio.com\/insightful-moments\/\">Insightful Moments<\/a> &#8211; a community education series that supports patients and families<\/li>\n<li><a href=\"https:\/\/www.ptcbio.com\/momentos-de-claridad\/\">Momentos de Claridad<\/a> es una serie de programas y materiales educativos para la comunidad, creados para apoyar a los pacientes con enfermedades raras y sus familiares.<\/li>\n<\/ul>\n<\/div>\n\t\t\t\n\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div class=\"seven-five__image-outer\" >\n\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"310\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/InsightfulMomentsLogo-768x310.jpg\" class=\"seven-five__image\" alt=\"\" sizes=\"auto, (min-width: 1920px) 576px, (min-width: 1440px) 552px, (min-width: 1200px) 456px, (min-width: 900px) 344px, (min-width: 768px) 720px, (min-width: 600px) 540px, 100vw\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/InsightfulMomentsLogo-768x310.jpg 768w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/InsightfulMomentsLogo-300x121.jpg 300w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/InsightfulMomentsLogo-1024x413.jpg 1024w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/InsightfulMomentsLogo-1536x619.jpg 1536w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/InsightfulMomentsLogo-2048x826.jpg 2048w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/06\/InsightfulMomentsLogo-400x161.jpg 400w\" \/>\t\t\t<\/div>\n\t\t\n\t<\/div>\n<\/div>\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<div  class=\"leadership-team\">\n\n\t<h2 class=\"heading--2 leadership-team__heading\">\n\t\tNorth American-Based Patient Engagement Team\t<\/h2>\n\n\t<div class=\"leadership-team__intro\">\n\t\t\t<\/div>\n\n\t\n<div class=\"team-grid\">\n\n\t<div class=\"team-grid__grid\">\n\t\t\t\t\t\t\t\n\t\t\t\t<a class=\"team-grid__member team-grid__member--grid team-grid__member--overlay team-grid__hover\" href=\"https:\/\/panel.ptcbio.com\/es\/team\/frank\/\">\n\t\t\t\t\t<div class=\"team-grid__image-wrapper\">\n\t\t\t\t\t\t<img decoding=\"async\" loading=\"lazy\" width=\"583\" height=\"732\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Frank.jpg\" class=\"team-grid__image wp-post-image\" alt=\"Headshot of Frank Quintieri of PTC Therapeutics&#039; Patient Engagement Team\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Frank.jpg 583w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Frank-239x300.jpg 239w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Frank-400x502.jpg 400w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Frank-342x429.jpg 342w\" sizes=\"auto, (max-width: 583px) 100vw, 583px\" \/>\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div class=\"team-grid__meta-wrapper\">\n\t\t\t\t\t\t<h3 class=\"team-grid__name\">\n\t\t\t\t\t\t\tFrank\t\t\t\t\t\t<\/h3>\n\t\t\t\t\t\t<div class=\"team-grid__meta\">\n\t\t\t\t\t\t\t<div class=\"team-grid__description\">\n\t\t\t\t\t\t\t\tVice President, Patient Relations North America\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t<a class=\"team-grid__member team-grid__member--grid team-grid__member--overlay team-grid__hover\" href=\"https:\/\/panel.ptcbio.com\/es\/team\/anne\/\">\n\t\t\t\t\t<div class=\"team-grid__image-wrapper\">\n\t\t\t\t\t\t<img decoding=\"async\" loading=\"lazy\" width=\"583\" height=\"732\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Anne.jpg\" class=\"team-grid__image wp-post-image\" alt=\"Headshot of Anne Bruns of PTC Therapeutics&#039; Patient Engagement Team\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Anne.jpg 583w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Anne-239x300.jpg 239w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Anne-400x502.jpg 400w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Anne-342x429.jpg 342w\" sizes=\"auto, (max-width: 583px) 100vw, 583px\" \/>\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div class=\"team-grid__meta-wrapper\">\n\t\t\t\t\t\t<h3 class=\"team-grid__name\">\n\t\t\t\t\t\t\tAnne\t\t\t\t\t\t<\/h3>\n\t\t\t\t\t\t<div class=\"team-grid__meta\">\n\t\t\t\t\t\t\t<div class=\"team-grid__description\">\n\t\t\t\t\t\t\t\tSenior Director, Clinical Patient Engagement, Global\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t<a class=\"team-grid__member team-grid__member--grid team-grid__member--overlay team-grid__hover\" href=\"https:\/\/panel.ptcbio.com\/es\/team\/patient-engagement\/aurora\/\">\n\t\t\t\t\t<div class=\"team-grid__image-wrapper\">\n\t\t\t\t\t\t<img decoding=\"async\" loading=\"lazy\" width=\"583\" height=\"732\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Aurora.jpg\" class=\"team-grid__image wp-post-image\" alt=\"Headshot of Aurora Flores of PTC Therapeutics&#039; Patient Engagement Team\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Aurora.jpg 583w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Aurora-239x300.jpg 239w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Aurora-400x502.jpg 400w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Aurora-342x429.jpg 342w\" sizes=\"auto, (max-width: 583px) 100vw, 583px\" \/>\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div class=\"team-grid__meta-wrapper\">\n\t\t\t\t\t\t<h3 class=\"team-grid__name\">\n\t\t\t\t\t\t\tAurora\t\t\t\t\t\t<\/h3>\n\t\t\t\t\t\t<div class=\"team-grid__meta\">\n\t\t\t\t\t\t\t<div class=\"team-grid__description\">\n\t\t\t\t\t\t\t\tPatient Engagement Liaison\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t<a class=\"team-grid__member team-grid__member--grid team-grid__member--overlay team-grid__hover\" href=\"https:\/\/panel.ptcbio.com\/es\/team\/emily\/\">\n\t\t\t\t\t<div class=\"team-grid__image-wrapper\">\n\t\t\t\t\t\t<img decoding=\"async\" loading=\"lazy\" width=\"583\" height=\"732\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Emily.jpg\" class=\"team-grid__image wp-post-image\" alt=\"Headshot of Emily Hintz of PTC Therapeutics&#039; Patient Engagement Team\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Emily.jpg 583w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Emily-239x300.jpg 239w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Emily-400x502.jpg 400w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Emily-342x429.jpg 342w\" sizes=\"auto, (max-width: 583px) 100vw, 583px\" \/>\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div class=\"team-grid__meta-wrapper\">\n\t\t\t\t\t\t<h3 class=\"team-grid__name\">\n\t\t\t\t\t\t\tEmily\t\t\t\t\t\t<\/h3>\n\t\t\t\t\t\t<div class=\"team-grid__meta\">\n\t\t\t\t\t\t\t<div class=\"team-grid__description\">\n\t\t\t\t\t\t\t\tPatient Engagement Liaison\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t<a class=\"team-grid__member team-grid__member--grid team-grid__member--overlay team-grid__hover\" href=\"https:\/\/panel.ptcbio.com\/es\/team\/karina\/\">\n\t\t\t\t\t<div class=\"team-grid__image-wrapper\">\n\t\t\t\t\t\t<img decoding=\"async\" loading=\"lazy\" width=\"583\" height=\"732\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Karina.jpg\" class=\"team-grid__image wp-post-image\" alt=\"Headshot of Karina Lambertini of PTC Therapeutics&#039; Patient Engagement Team\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Karina.jpg 583w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Karina-239x300.jpg 239w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Karina-400x502.jpg 400w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Karina-342x429.jpg 342w\" sizes=\"auto, (max-width: 583px) 100vw, 583px\" \/>\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div class=\"team-grid__meta-wrapper\">\n\t\t\t\t\t\t<h3 class=\"team-grid__name\">\n\t\t\t\t\t\t\tKarina\t\t\t\t\t\t<\/h3>\n\t\t\t\t\t\t<div class=\"team-grid__meta\">\n\t\t\t\t\t\t\t<div class=\"team-grid__description\">\n\t\t\t\t\t\t\t\tPatient Engagement Liaison\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t<a class=\"team-grid__member team-grid__member--grid team-grid__member--overlay team-grid__hover\" href=\"https:\/\/panel.ptcbio.com\/es\/team\/malisa\/\">\n\t\t\t\t\t<div class=\"team-grid__image-wrapper\">\n\t\t\t\t\t\t<img decoding=\"async\" loading=\"lazy\" width=\"583\" height=\"732\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Malisa.jpg\" class=\"team-grid__image wp-post-image\" alt=\"Headshot of Malisa Rust of PTC Therapeutics&#039; Patient Engagement Team\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Malisa.jpg 583w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Malisa-239x300.jpg 239w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Malisa-400x502.jpg 400w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Malisa-342x429.jpg 342w\" sizes=\"auto, (max-width: 583px) 100vw, 583px\" \/>\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div class=\"team-grid__meta-wrapper\">\n\t\t\t\t\t\t<h3 class=\"team-grid__name\">\n\t\t\t\t\t\t\tMalisa\t\t\t\t\t\t<\/h3>\n\t\t\t\t\t\t<div class=\"team-grid__meta\">\n\t\t\t\t\t\t\t<div class=\"team-grid__description\">\n\t\t\t\t\t\t\t\tPatient Engagement Lead, Metabolic\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t<a class=\"team-grid__member team-grid__member--grid team-grid__member--overlay team-grid__hover\" href=\"https:\/\/panel.ptcbio.com\/es\/team\/natalie\/\">\n\t\t\t\t\t<div class=\"team-grid__image-wrapper\">\n\t\t\t\t\t\t<img decoding=\"async\" loading=\"lazy\" width=\"583\" height=\"732\" src=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Natalie.jpg\" class=\"team-grid__image wp-post-image\" alt=\"Headshot of Natalie Beall of PTC Therapeutics&#039; Patient Engagement Team\" srcset=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Natalie.jpg 583w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Natalie-239x300.jpg 239w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Natalie-400x502.jpg 400w, https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/05\/PTC-Patient-Engagement-Team_Natalie-342x429.jpg 342w\" sizes=\"auto, (max-width: 583px) 100vw, 583px\" \/>\t\t\t\t\t<\/div>\n\n\t\t\t\t\t<div class=\"team-grid__meta-wrapper\">\n\t\t\t\t\t\t<h3 class=\"team-grid__name\">\n\t\t\t\t\t\t\tNatalie\t\t\t\t\t\t<\/h3>\n\t\t\t\t\t\t<div class=\"team-grid__meta\">\n\t\t\t\t\t\t\t<div class=\"team-grid__description\">\n\t\t\t\t\t\t\t\tPatient Engagement Liaison\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<\/div>\n\n<\/div>\n\n\n\t<\/div>\n<\/div>\n\n\n\n\n\n<div  class=\"text-block text-block--standard color-theme--purple-gradient\">\n\t\t<div class=\"text-block__wrapper\" >\n\n\t\t\n\t\t\t\t\t<h3 class=\"text-block__heading\">\n\t\t\t\t<span class=\"heading--3\"  data-ptc-fitty=\"\">Clinical Trials at PTC<\/span>\n\t\t\t<\/h3>\n\t\t\n\t\t<div class=\"text-block__content wysiwyg--decoration wysiwyg--color\">\n\t\t\t<p>PTC is conducting clinical trials in a variety of disease areas. New ones are continually being added.<\/p>\n\t\t<\/div>\n\n\t\t\n\t\t\t<div class=\"dual-cta__ctas dual-cta__ctas--same dual-cta__ctas--center\">\n\n\t\t\t\t\t<a href=\"https:\/\/clinicaltrials.ptcbio.com\" target=\"\" class=\"dual-cta__button btn btn--dark-primary\">Find a clinical trial<\/a>\n\t\t\n\t\t\n\t\t\n\t<\/div>\n\n\t<\/div>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>Through collaboration, compassion, and partnership, we provide support that empowers. We also work with advocacy groups around the world to help raise awareness of the unique challenges our community faces.<\/p>\n","protected":false},"author":0,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-18574","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.9 (Yoast SEO v27.9) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Patients &amp; Caregivers Resources - PTC Therapeutics (Spain)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/panel.ptcbio.com\/es\/patients-caregivers-resources\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Patients &amp; Caregivers Resources\" \/>\n<meta property=\"og:description\" content=\"Through collaboration, compassion, and partnership, we provide support that empowers. 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