{"id":18267,"date":"2026-05-01T08:00:00","date_gmt":"2026-05-01T12:00:00","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=18267"},"modified":"2026-05-01T08:00:00","modified_gmt":"2026-05-01T12:00:00","slug":"finding-strength-in-the-giant-family-of-the-fa-community","status":"publish","type":"post","link":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/","title":{"rendered":"Finding Strength in the \u201cGiant Family\u201d of the FA Community"},"content":{"rendered":"\n<p class=\"wp-block-paragraph core-block core-paragraph\">Kailey, who lives in Louisiana with her boyfriend and two dogs, was diagnosed with Friedreich\u2019s ataxia (FA) after years of concerning symptoms and multiple kinds of testing. She describes FA as feeling like your brain and body aren\u2019t communicating. Despite the challenges of living with FA, she finds strength in the FA community and admires the community\u2019s resilience; she also appreciates coming together so they can accept the realities of living with FA together. In these videos, she shares more about her FA journey, the common symptoms of FA and shares encouragement for others in the FA community.<\/p>\n\n\n\n<div style=\"padding:56.25% 0 0 0;position:relative;\"><iframe src=\"https:\/\/player.vimeo.com\/video\/1183786445?h=28cd065fe9&amp;badge=0&amp;autopause=0&amp;player_id=0&amp;app_id=58479\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" style=\"position:absolute;top:0;left:0;width:100%;height:100%;\" title=\"Kailey's FA Testimonial - 1\"><\/iframe><\/div><script src=\"https:\/\/player.vimeo.com\/api\/player.js\"><\/script>\n\n\n\n<div style=\"--mg-spacer-desktop: 40px; --mg-spacer-mobile: 20px; height: var(--mg-spacer-desktop);\" aria-hidden=\"true\" class=\"mg-spacer--responsive wp-block-spacer\"><\/div>\n\n\n\n<div style=\"padding:56.25% 0 0 0;position:relative;\"><iframe src=\"https:\/\/player.vimeo.com\/video\/1183785925?h=0754d82d03&amp;badge=0&amp;autopause=0&amp;player_id=0&amp;app_id=58479\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" style=\"position:absolute;top:0;left:0;width:100%;height:100%;\" title=\"Kailey's FA Testimonial - 2\"><\/iframe><\/div><script src=\"https:\/\/player.vimeo.com\/api\/player.js\"><\/script>\n","protected":false},"excerpt":{"rendered":"<p>Kailey, who lives in Louisiana with her boyfriend and two dogs, was diagnosed with Friedreich\u2019s ataxia (FA) after years of concerning symptoms and multiple kinds of testing. She describes FA as feeling like your brain and body aren\u2019t communicating. Despite the challenges of living with FA, she finds strength in the FA community and admires&hellip;<\/p>\n","protected":false},"author":0,"featured_media":18271,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[5,6],"tags":[],"media-type":[47],"therapeutic-area":[31],"class_list":["post-18267","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.9 (Yoast SEO v27.9) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Finding Strength in the \u201cGiant Family\u201d of the FA Community - PTC Therapeutics (Spain)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Finding Strength in the \u201cGiant Family\u201d of the FA Community\" \/>\n<meta property=\"og:description\" content=\"Kailey, who lives in Louisiana with her boyfriend and two dogs, was diagnosed with Friedreich\u2019s ataxia (FA) after years of concerning symptoms and multiple kinds of testing. She describes FA as feeling like your brain and body aren\u2019t communicating. Despite the challenges of living with FA, she finds strength in the FA community and admires&hellip;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/\" \/>\n<meta property=\"og:site_name\" content=\"PTC Therapeutics (Spain)\" \/>\n<meta property=\"article:published_time\" content=\"2026-05-01T12:00:00+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/Kailey-FA-1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"466\" \/>\n\t<meta property=\"og:image:height\" content=\"262\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data1\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/\"},\"author\":{\"name\":\"\",\"@id\":\"\"},\"headline\":\"Finding Strength in the \u201cGiant Family\u201d of the FA Community\",\"datePublished\":\"2026-05-01T12:00:00+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/\"},\"wordCount\":111,\"publisher\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2026\\\/04\\\/Kailey-FA-1.png\",\"articleSection\":[\"Rare Disease Community\",\"Rare Journeys\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/\",\"name\":\"Finding Strength in the \u201cGiant Family\u201d of the FA Community - PTC Therapeutics (Spain)\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2026\\\/04\\\/Kailey-FA-1.png\",\"datePublished\":\"2026-05-01T12:00:00+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/#primaryimage\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2026\\\/04\\\/Kailey-FA-1.png\",\"contentUrl\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2026\\\/04\\\/Kailey-FA-1.png\",\"width\":466,\"height\":262,\"caption\":\"A thumbnail image for Rare Journeys featuring a woman in a yellow dress named Kailey who is living with Friedreich's ataxia.\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2026\\\/05\\\/01\\\/finding-strength-in-the-giant-family-of-the-fa-community\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Finding Strength in the \u201cGiant Family\u201d of the FA Community\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#website\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/\",\"name\":\"PTC Therapeutics Espa\u00f1a\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#organization\",\"name\":\"PTC Therapeutics Espa\u00f1a\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2026\\\/04\\\/ptcLogo.png\",\"contentUrl\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2026\\\/04\\\/ptcLogo.png\",\"width\":542,\"height\":542,\"caption\":\"PTC Therapeutics Espa\u00f1a\"},\"image\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#\\\/schema\\\/logo\\\/image\\\/\"}}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Finding Strength in the \u201cGiant Family\u201d of the FA Community - PTC Therapeutics (Spain)","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/","og_locale":"es_ES","og_type":"article","og_title":"Finding Strength in the \u201cGiant Family\u201d of the FA Community","og_description":"Kailey, who lives in Louisiana with her boyfriend and two dogs, was diagnosed with Friedreich\u2019s ataxia (FA) after years of concerning symptoms and multiple kinds of testing. She describes FA as feeling like your brain and body aren\u2019t communicating. Despite the challenges of living with FA, she finds strength in the FA community and admires&hellip;","og_url":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/","og_site_name":"PTC Therapeutics (Spain)","article_published_time":"2026-05-01T12:00:00+00:00","og_image":[{"width":466,"height":262,"url":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/Kailey-FA-1.png","type":"image\/png"}],"twitter_card":"summary_large_image","twitter_misc":{"Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/#article","isPartOf":{"@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/"},"author":{"name":"","@id":""},"headline":"Finding Strength in the \u201cGiant Family\u201d of the FA Community","datePublished":"2026-05-01T12:00:00+00:00","mainEntityOfPage":{"@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/"},"wordCount":111,"publisher":{"@id":"https:\/\/panel.ptcbio.com\/es\/#organization"},"image":{"@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/#primaryimage"},"thumbnailUrl":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/Kailey-FA-1.png","articleSection":["Rare Disease Community","Rare Journeys"],"inLanguage":"es"},{"@type":"WebPage","@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/","url":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/","name":"Finding Strength in the \u201cGiant Family\u201d of the FA Community - PTC Therapeutics (Spain)","isPartOf":{"@id":"https:\/\/panel.ptcbio.com\/es\/#website"},"primaryImageOfPage":{"@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/#primaryimage"},"image":{"@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/#primaryimage"},"thumbnailUrl":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/Kailey-FA-1.png","datePublished":"2026-05-01T12:00:00+00:00","breadcrumb":{"@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/"]}]},{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/#primaryimage","url":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/Kailey-FA-1.png","contentUrl":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/Kailey-FA-1.png","width":466,"height":262,"caption":"A thumbnail image for Rare Journeys featuring a woman in a yellow dress named Kailey who is living with Friedreich's ataxia."},{"@type":"BreadcrumbList","@id":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/finding-strength-in-the-giant-family-of-the-fa-community\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/panel.ptcbio.com\/es\/"},{"@type":"ListItem","position":2,"name":"Finding Strength in the \u201cGiant Family\u201d of the FA Community"}]},{"@type":"WebSite","@id":"https:\/\/panel.ptcbio.com\/es\/#website","url":"https:\/\/panel.ptcbio.com\/es\/","name":"PTC Therapeutics Espa\u00f1a","description":"","publisher":{"@id":"https:\/\/panel.ptcbio.com\/es\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/panel.ptcbio.com\/es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Organization","@id":"https:\/\/panel.ptcbio.com\/es\/#organization","name":"PTC Therapeutics Espa\u00f1a","url":"https:\/\/panel.ptcbio.com\/es\/","logo":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/panel.ptcbio.com\/es\/#\/schema\/logo\/image\/","url":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/ptcLogo.png","contentUrl":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/ptcLogo.png","width":542,"height":542,"caption":"PTC Therapeutics Espa\u00f1a"},"image":{"@id":"https:\/\/panel.ptcbio.com\/es\/#\/schema\/logo\/image\/"}}]}},"_links":{"self":[{"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/posts\/18267","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/comments?post=18267"}],"version-history":[{"count":0,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/posts\/18267\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/media\/18271"}],"wp:attachment":[{"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/media?parent=18267"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/categories?post=18267"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/tags?post=18267"},{"taxonomy":"media-type","embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/media-type?post=18267"},{"taxonomy":"therapeutic-area","embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/therapeutic-area?post=18267"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}