{"id":18277,"date":"2026-05-01T08:00:00","date_gmt":"2026-05-01T12:00:00","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=18277"},"modified":"2026-05-01T08:00:00","modified_gmt":"2026-05-01T12:00:00","slug":"never-ending-support","status":"publish","type":"post","link":"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/never-ending-support\/","title":{"rendered":"Never-Ending Support"},"content":{"rendered":"\n<p class=\"wp-block-paragraph core-block core-paragraph\">Amanda, who lives with phenylketonuria (PKU), and her mom, Jill, share what it\u2019s like to manage the condition every day. From navigating meals to preparing for situations that aren\u2019t always PKU-friendly, Amanda describes the planning, resilience and determination it takes to stay on track &#8211; supported by family, friends and the PKU community. She also highlights the unwavering support she receives from her mom, dad and brothers, and her positive outlook on life. Watch the video to hear their story:<\/p>\n\n\n\n<div style=\"padding:56.25% 0 0 0;position:relative;\"><iframe src=\"https:\/\/player.vimeo.com\/video\/1187026350?h=e4e187aedd&amp;badge=0&amp;autopause=0&amp;player_id=0&amp;app_id=58479\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" style=\"position:absolute;top:0;left:0;width:100%;height:100%;\" title=\"PTC_Amanda and Jill_Video_2026\"><\/iframe><\/div><script src=\"https:\/\/player.vimeo.com\/api\/player.js\"><\/script>\n","protected":false},"excerpt":{"rendered":"<p>Amanda, who lives with phenylketonuria (PKU), and her mom, Jill, share what it\u2019s like to manage the condition every day. From navigating meals to preparing for situations that aren\u2019t always PKU-friendly, Amanda describes the planning, resilience and determination it takes to stay on track &#8211; supported by family, friends and the PKU community. She also&hellip;<\/p>\n","protected":false},"author":0,"featured_media":18278,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[5,6],"tags":[],"media-type":[47],"therapeutic-area":[41],"class_list":["post-18277","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.9 (Yoast SEO v27.9) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Never-Ending Support - PTC Therapeutics (Spain)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/panel.ptcbio.com\/es\/2026\/05\/01\/never-ending-support\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Never-Ending Support\" \/>\n<meta property=\"og:description\" content=\"Amanda, who lives with phenylketonuria (PKU), and her mom, Jill, share what it\u2019s like to manage the condition every day. 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