{"id":5767,"date":"2021-03-16T18:38:27","date_gmt":"2021-03-16T18:38:27","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=5767"},"modified":"2021-03-16T18:38:27","modified_gmt":"2021-03-16T18:38:27","slug":"striving-to-change-perceptions-duchennecan","status":"publish","type":"post","link":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/","title":{"rendered":"Striving to Change Perceptions"},"content":{"rendered":"\n
\n\n\t\n\t
\n\t\t
\n\t\t\t
\n\t\t\t\tMy advice to families living with Duchenne is to remember that your child\u2019s hopes, dreams and aspirations are not limited or defined by Duchenne. I think it\u2019s important to break through the noise of what your son cannot do, focus on the things he is able to do, and embrace life with Duchenne by living in the moment.\t\t\t<\/div>\n\t\t<\/blockquote>\n\n\t\t\t\t\t\n\t\t\t\tTiffany Cook\t\t\t<\/cite>\n\t\t\n\t\t\t\t\t\n\t\t\t\tSenior Director, CureDuchenne\t\t\t<\/cite>\n\t\t\t<\/div>\n\n<\/div>\n\n\n\n\n

Tiffany knows first-hand the impact Duchenne muscular dystrophy<\/a> has on an affected individual and their family members. After Tiffany\u2019s son, Wil, was diagnosed with a rare form of Duchenne, she immersed herself in helping others navigate their Duchenne journeys through her work at CureDuchenne<\/a>, a non-profit organization. Using her experience as a qualified speech-language pathologist and mom to a son with Duchenne, Tiffany is helping others live meaningful and purposeful lives by shifting mindsets and motivating families to focus on abilities rather than disabilities.<\/p>\n\n\n\n

That\u2019s how a three-part webinar series entitled, \u201cEmbrace This Moment\u201d came about: Reflecting on Tiffany\u2019s personal journey, this series covers topics connected to the various stages of Duchenne. It is intended to help families transform their mindset and find silver linings.<\/p>\n\n\n\n

Among other initiatives, Tiffany\u2019s proudest accomplishment is working on the CureDuchenne FUTURES national conference, an important gathering for the community. In 2019, this event attracted over 800 people and featured panels focusing on all aspects of living.<\/p>\n\n\n\n

Tiffany\u2019s motivation and \u201cability\u201d to create a positive impact in the community exemplifies what families with #DuchenneCan do when focusing on positive things in their lives.<\/p>\n","protected":false},"excerpt":{"rendered":"

Tiffany, who’s son has Duchenne, motivates others to focus on abilities rather than disabilities.<\/p>\n","protected":false},"author":0,"featured_media":16289,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[5,6],"tags":[],"media-type":[20],"therapeutic-area":[26],"class_list":["post-5767","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community","category-rare-journeys"],"acf":[],"yoast_head":"\nStriving to Change Perceptions - PTC Therapeutics (Spain)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Striving to Change Perceptions\" \/>\n<meta property=\"og:description\" content=\"Tiffany, who's son has Duchenne, motivates others to focus on abilities rather than disabilities.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/\" \/>\n<meta property=\"og:site_name\" content=\"PTC Therapeutics (Spain)\" \/>\n<meta property=\"article:published_time\" content=\"2021-03-16T18:38:27+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2024\/09\/Tiffany-Will-DMD.png\" \/>\n\t<meta property=\"og:image:width\" content=\"466\" \/>\n\t<meta property=\"og:image:height\" content=\"262\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/\"},\"author\":{\"name\":\"\",\"@id\":\"\"},\"headline\":\"Striving to Change Perceptions\",\"datePublished\":\"2021-03-16T18:38:27+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/\"},\"wordCount\":195,\"publisher\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2024\\\/09\\\/Tiffany-Will-DMD.png\",\"articleSection\":[\"Rare Disease Community\",\"Rare Journeys\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/\",\"name\":\"Striving to Change Perceptions - PTC Therapeutics (Spain)\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2024\\\/09\\\/Tiffany-Will-DMD.png\",\"datePublished\":\"2021-03-16T18:38:27+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/#primaryimage\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2024\\\/09\\\/Tiffany-Will-DMD.png\",\"contentUrl\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2024\\\/09\\\/Tiffany-Will-DMD.png\",\"width\":466,\"height\":262,\"caption\":\"Rare Journeys - Tiffany and Will\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/2021\\\/03\\\/16\\\/striving-to-change-perceptions-duchennecan\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Striving to Change Perceptions\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#website\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/\",\"name\":\"PTC Therapeutics Espa\u00f1a\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#organization\",\"name\":\"PTC Therapeutics Espa\u00f1a\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2026\\\/04\\\/ptcLogo.png\",\"contentUrl\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/wp-content\\\/uploads\\\/sites\\\/20\\\/2026\\\/04\\\/ptcLogo.png\",\"width\":542,\"height\":542,\"caption\":\"PTC Therapeutics Espa\u00f1a\"},\"image\":{\"@id\":\"https:\\\/\\\/panel.ptcbio.com\\\/es\\\/#\\\/schema\\\/logo\\\/image\\\/\"}}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Striving to Change Perceptions - PTC Therapeutics (Spain)","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/","og_locale":"es_ES","og_type":"article","og_title":"Striving to Change Perceptions","og_description":"Tiffany, who's son has Duchenne, motivates others to focus on abilities rather than disabilities.","og_url":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/","og_site_name":"PTC Therapeutics (Spain)","article_published_time":"2021-03-16T18:38:27+00:00","og_image":[{"width":466,"height":262,"url":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2024\/09\/Tiffany-Will-DMD.png","type":"image\/png"}],"twitter_card":"summary_large_image","twitter_misc":{"Tiempo de lectura":"2 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/#article","isPartOf":{"@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/"},"author":{"name":"","@id":""},"headline":"Striving to Change Perceptions","datePublished":"2021-03-16T18:38:27+00:00","mainEntityOfPage":{"@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/"},"wordCount":195,"publisher":{"@id":"https:\/\/panel.ptcbio.com\/es\/#organization"},"image":{"@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/#primaryimage"},"thumbnailUrl":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2024\/09\/Tiffany-Will-DMD.png","articleSection":["Rare Disease Community","Rare Journeys"],"inLanguage":"es"},{"@type":"WebPage","@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/","url":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/","name":"Striving to Change Perceptions - PTC Therapeutics (Spain)","isPartOf":{"@id":"https:\/\/panel.ptcbio.com\/es\/#website"},"primaryImageOfPage":{"@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/#primaryimage"},"image":{"@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/#primaryimage"},"thumbnailUrl":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2024\/09\/Tiffany-Will-DMD.png","datePublished":"2021-03-16T18:38:27+00:00","breadcrumb":{"@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/"]}]},{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/#primaryimage","url":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2024\/09\/Tiffany-Will-DMD.png","contentUrl":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2024\/09\/Tiffany-Will-DMD.png","width":466,"height":262,"caption":"Rare Journeys - Tiffany and Will"},{"@type":"BreadcrumbList","@id":"https:\/\/panel.ptcbio.com\/es\/2021\/03\/16\/striving-to-change-perceptions-duchennecan\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/panel.ptcbio.com\/es\/"},{"@type":"ListItem","position":2,"name":"Striving to Change Perceptions"}]},{"@type":"WebSite","@id":"https:\/\/panel.ptcbio.com\/es\/#website","url":"https:\/\/panel.ptcbio.com\/es\/","name":"PTC Therapeutics Espa\u00f1a","description":"","publisher":{"@id":"https:\/\/panel.ptcbio.com\/es\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/panel.ptcbio.com\/es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Organization","@id":"https:\/\/panel.ptcbio.com\/es\/#organization","name":"PTC Therapeutics Espa\u00f1a","url":"https:\/\/panel.ptcbio.com\/es\/","logo":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/panel.ptcbio.com\/es\/#\/schema\/logo\/image\/","url":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/ptcLogo.png","contentUrl":"https:\/\/panel.ptcbio.com\/es\/wp-content\/uploads\/sites\/20\/2026\/04\/ptcLogo.png","width":542,"height":542,"caption":"PTC Therapeutics Espa\u00f1a"},"image":{"@id":"https:\/\/panel.ptcbio.com\/es\/#\/schema\/logo\/image\/"}}]}},"_links":{"self":[{"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/posts\/5767","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/comments?post=5767"}],"version-history":[{"count":0,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/posts\/5767\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/media\/16289"}],"wp:attachment":[{"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/media?parent=5767"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/categories?post=5767"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/tags?post=5767"},{"taxonomy":"media-type","embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/media-type?post=5767"},{"taxonomy":"therapeutic-area","embeddable":true,"href":"https:\/\/panel.ptcbio.com\/es\/wp-json\/wp\/v2\/therapeutic-area?post=5767"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}