{"id":6667,"date":"2021-09-16T21:34:07","date_gmt":"2021-09-16T21:34:07","guid":{"rendered":"https:\/\/www.ptcbio.com\/?p=6667"},"modified":"2021-09-16T21:34:07","modified_gmt":"2021-09-16T21:34:07","slug":"for-l-a-n-d-community-can-feel-like-family-duchennecan","status":"publish","type":"post","link":"https:\/\/panel.ptcbio.com\/es\/2021\/09\/16\/for-l-a-n-d-community-can-feel-like-family-duchennecan\/","title":{"rendered":"For L.A.N.D., Community CAN Feel Like Family &#8211; #DuchenneCan"},"content":{"rendered":"\n<div  class=\"quote-block  color-theme--white\">\n\n\t\n\t<div class=\"quote-block__content\">\n\t\t<blockquote class=\"quote-block__text color-theme-border--white\">\n\t\t\t<div class=\"quote-block__heading heading--4\">\n\t\t\t\tL.A.N.D. is more than an organization, it\u2019s like a family. We support each other during challenging times and we celebrate together our victories.\t\t\t<\/div>\n\t\t<\/blockquote>\n\n\t\t\t\t\t<cite class=\"quote-block__author quote-block__author--name\">\n\t\t\t\tAida\t\t\t<\/cite>\n\t\t\n\t\t\t\t\t<cite class=\"quote-block__author quote-block__author--title\">\n\t\t\t\tFounder of the Lebanese Association for Neuromuscular Diseases\t\t\t<\/cite>\n\t\t\t<\/div>\n\n<\/div>\n\n\n\n\n<p class=\"wp-block-paragraph core-block core-paragraph\">Aida and her husband founded the Lebanese Association for Neuromuscular Diseases (L.A.N.D.) in 2011, following their son Wafik\u2019s diagnosis with <a href=\"https:\/\/www.ptcbio.com\/our-science\/therapeutic-areas\/about-duchenne-muscular-dystrophy\/\">Duchenne muscular dystrophy<\/a>. At that time, they encountered a lack of information and support for their family and others living with neuromuscular diseases in Lebanon. They realized there was a need for a community organization where families could connect, exchange information and support each other through their journeys. L.A.N.D. is now a close-knit community of 65+ patients and families.<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/admin.ptcbio.com\/en\/wp-content\/uploads\/sites\/3\/2021\/09\/Aida-and-Family.jpg\" alt=\"Aida and Her Family\" class=\"wp-image-6668\"\/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph core-block core-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph core-block core-paragraph\">Through L.A.N.D., Aida and her advocates aim to increase awareness of Duchenne, while supporting patients and their families, post-diagnosis. The association\u2019s fundraising efforts help to support families who are struggling with the cost of care, and educate its members about therapy options. L.A.N.D. also supports access to vital resources such as wheelchairs and physiotherapy.<\/p>\n\n\n\n<p class=\"wp-block-paragraph core-block core-paragraph\">Primarily, however, the foundation focuses on facilitating social mobility and fun.<\/p>\n\n\n\n<p class=\"wp-block-paragraph core-block core-paragraph\">Since L.A.N.D. was created, it has held yearly conferences, in addition to its daily contact and support work, where all the families get together. These frequent social opportunities foster networking and friendships.<\/p>\n\n\n\n<p class=\"wp-block-paragraph core-block core-paragraph\">Wafik is now 20 years old. He, like many others, is experiencing mixed emotions as he transitions to adulthood and his life with Duchenne evolves. In this family, everyone plays an important role, providing emotional support, encouragement and love to help Wafik deal with life\u2019s challenges.<\/p>\n\n\n\n<p class=\"wp-block-paragraph core-block core-paragraph\">The same can be said of the L.A.N.D. community. It\u2019s a family that others can rely on, in good times and bad.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Aida and her husband founded the Lebanese Association for Neuromuscular Diseases (L.A.N.D.) in 2011, following their son Wafik\u2019s diagnosis with Duchenne muscular dystrophy. At that time, they encountered a lack of information and support for their family and others living with neuromuscular diseases in Lebanon. They realized there was a need for a community organization&hellip;<\/p>\n","protected":false},"author":0,"featured_media":9448,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[5],"tags":[],"media-type":[20],"therapeutic-area":[26],"class_list":["post-6667","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-disease-community"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.9 (Yoast SEO v27.9) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>For L.A.N.D., Community CAN Feel Like Family - #DuchenneCan - PTC Therapeutics (Spain)<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/panel.ptcbio.com\/es\/2021\/09\/16\/for-l-a-n-d-community-can-feel-like-family-duchennecan\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"For L.A.N.D., Community CAN Feel Like Family - #DuchenneCan\" \/>\n<meta property=\"og:description\" content=\"Aida and her husband founded the Lebanese Association for Neuromuscular Diseases (L.A.N.D.) in 2011, following their son Wafik\u2019s diagnosis with Duchenne muscular dystrophy. 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