In honor of International Ataxia Awareness Day (IAAD), recognized on September 25th each year, we are joining forces with the global ataxia community in their efforts to bring awareness to this rare disease. The theme of this year’s day is “Ask Me About Ataxia” – encouraging people to learn more about ataxia by asking questions. To acknowledge this important day and help get the conversation started, we connected with three people from around the world living with Friedreich’s ataxia (FA), the most common inherited ataxia, and are sharing their experiences to help educate others.
Read their stories
- Read More
Tomáš Shares his Many Passions
Tomáš wants to remain as independent and active as possible with FA for as long as possible. - Read More
Brittany Brings Order to Friedreich’s Ataxia
Brittany encourages others with Friedreich's ataxia to take their time accepting their diagnosis. - Read More
Kailey is Thankful for her FAmily
Kailey is grateful for the Friedreich's ataxia community and strives to raise awareness of FA.